Saturday, November 5, 2011

IV Has Been Cut Off

Well I had my last dose of IV meds last night. We have decided to maintain my picc line because there are two documents pending with the insurance to decide if there is still hope that I might still have a chance of my meds being covered. In the meantime I will be talking with my doctors to decide which oral antibiotics I will be starting. If the IV meds aren't covered then there's no way we can pay for them. I will have my line pulled and switch to oral in that case. With having been on IV for quite awhile, switching to oral meds might be a good thing for me. They are harder on your insides but so are many meds that I'm on. As long as I continue on the road to health then that is all that matters at this point. I was quite upset the last couple weeks with battling with my insurance company and talking with doctors and my infusion company, it's been quite the ordeal but you have to come to terms with it that insurance companies are quite stingy with the Lyme Disease medications because of the long term cost and the diagnosis itself. We just have to find other ways to get meds that are going to keep me going!

I also have another option to go with the oral meds. I was tested for CCSVI which means: Chronic Cerebrospinal Venous Insufficiency (CCSVI or CCVI) is a term developed by Italian researcher Paolo Zamboni in 2008 to describe compromised flow of blood in the veins draining the central nervous system. Zamboni hypothesized that it played a role in the cause of multiple sclerosis (MS).(Wikipedia). I tested positive for this and have a couple problem areas. Here is the conclusion from my procedure: Abnormal valve in proximal internal jugular vein causing stenosis of internal jugular vein. Left illiac vein compression by right common illiac artery and spine causing left common illiac vein stenosis and left internal illiac vein reversal. With getting the procedure done most people find that by fixing the restricted blood flow to the brain really helps with headaches, brain fog and confusion. The vein that is pinched by my spine and artery, I was told by the specialist that by fixing this problem, I might be able to walk again. Which isn't a guarantee but if it helps at all it would be huge! I see my San Francisco doctor in January and I will be discussing this procedure with him and I will probably have it done around the end of January, tentatively speaking.

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